A look inside the love and life of a brother and sister dealing with their own personal battles. Meet Sara and Joey. Joey has Down Syndrome but that doesn’t stop him from living the life he wants nor does it stop Sara from enjoying it with him. This duo has a story to tell and I hope you all enjoy it.

 

At 29, Sara spends her days working in New York City and her nights studying and attending classes at Pace University. With only a week until graduation she is eager to reach the finish line. Even with her busy schedule she always makes time for one of the brightest spots in her life, her brother Joey.

Only a few years apart, Sara spent a lot of her life being the protector, best friend and the most lovable sister she could to her younger brother. From sitting with his classes at lunch, to taking him on sometimes weekly dates, she makes she he knows just how much she loves him.

Joey’s down syndrome doesn’t stop him or Sara from living a full and exciting life. From concerts and ball games to sports and movie nights they do it all, but not without struggle. While Joey’s struggles can be seen on the surface, Sara’s goes beyond the surface.

For the last couple of years, she has been diagnosed with Crohn’s Disease. Crohn’s causes inflammation of the lining of your digestive tract, which can lead to abdominal pain, severe diarrhea, fatigue, weight loss and malnutrition. Sometimes dealing with her own severe pain, she would have to keep her attitude and spirits high to keep up with the energy and attitude her brother displayed.

Not ones to focus on the pain or conform to the stereotype, Sara and Joey are a pair that simply can not be limited to their disabilities. Life is there’s for the taking and they are enjoying it as best as they can.

For more information about Down Syndrome and Crohn’s check out the National Down Syndrome Society. and the Crohn’s and Colitis Foundation of America .

 

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